← Return to Are there suggestions for living with pure autonmic failure (PAF)?

Discussion
Comment receiving replies
Profile picture for cctee @cctee

I had the Qsart sweat test. Sounds like you had the full body in a device to make you sweat with the powder. My Qsart showed normal in arm and low in legs and foot. Frankly, I still do not understand it all. Have not seen the doctor, so I’ve only been told I have autonomic neuropathy. I have terrible insomnia, daytime grogginess, sleep apnea and wake up with dreams and recall. I really have been thinking it’s MSA with the tremor and the restless legs. My life the past year has been miserable. Oddly, I had a tilt table test at Mayo in 2008 that showed orthostatic intolerance, but the Qsart and the rest of the tests were fine. I imagine what ever is going on it’s been working on me since then. I like to understand, and these medical problems seem to have few answers if any. Thanks for sharing, I’m 72 so not young onset here (unless you count the 2008 test).

Jump to this post


Replies to "I had the Qsart sweat test. Sounds like you had the full body in a device..."

Yes, I did have the sweat test with the powder. It was surreal.

I am fairly certain I have been dealing with this to a degree most of my life.

I really started noticing an increase of symptoms when I was 46 (I am now 61). But it wasn’t until I was 48 that I passed out for the first time. It still took a year to get to Stanford Neurology.

The amount of medicine I take has increased over the years. I do get concerned about how much I take and at what point do I max out.

I hope you find relief soon.