Connect
← Return to My lessons learned about idopathic non-diabetic peripheral neuropathy
Discussion
My lessons learned about idopathic non-diabetic peripheral neuropathy
Neuropathy | Last Active: Aug 3 9:35am | Replies (38)Comment receiving replies
@jeffrapp - Just wanted to comment on the frustration that a neurologist expressed to me at Mayo Clinic in Rochester, MN in Feb of 2020. After all the tests were completed, my wife and I had a meeting with the neurologist to review the results. She said to me unfortunately, with your peripheral neuropathy, there is no cure, you will have this for life but not die from it. At that point, she had tears in her eyes. She mentioned how frustrating it is for both patient and physician not having the ability to help me. She gave me the best advice ever, she said to remain as active as you can. I took it to heart and have remained active and will continue to do so.
Replies to "@jeffrapp - Just wanted to comment on the frustration that a neurologist expressed to me at..."
Hi Jeff,
Every once in a while we read a post that says it all. Really to the point good post! This sneaky no cure PN is so so debilitating, & life changing for so many., we need to keep searching for relief. This post of yours is a very good summation! Of course we do not wish this on anyone, but then, we are relieved that we are not alone! Sounds bad when I say it like that, but we all need answers, so this is a wonderful site to share ideas & remedies! Still never enough info , but we all hope LOTS of folks keep looking for remedies! I just hope everyone keeps sharing them too! It really is so helpful when we share a new idea for relief or information about a pill, patch or anything that fights the pain from PN. Lots of different kinds of pain, so all these different remedies need to be shared!! (all the time) And, yes, remain as active as you can. I am 90, so it is hitting me hard! I need to feel good since I am not winning any contests.
Thanks to John for this site!!
Yes a very complicated disease. I am going on 20+ years and as I age (75) it has worsen. I eat healthy, cocktails very very limited, and exercise/stretch. Keep walking and moving. I love heat and Vicks rub at night. And have a bedtime routine- it’s a must for me. Prayers for you!
Connect
But don't give up on searching for solutions. There are all kinds of alternative treatments but perhaps no cures yet. Try different topicals. Try castrol, how about lidocaine mixed with essential oils like frankincense (used carefully since lidocaine can be toxic). Try concentrated oils like magnesium oil, coQ10 concentrate. Different strokes for different folks. Do your homework and find out what is on PubMed for you type of PN. You can always read the abstract and learn. As you learn more you take more control. Being active is great. But don't just rely on one thing...learn more.