@lpx3 So sorry to hear these struggles Flovent HFA 220 had been helping me- by swallowing, not inhaling, to coat my esophagus. That said, GSK discontinued the brand, reselling under generic and my insurance won't cover it. Surgeon suggested I try Budesonide with honey and the yellow packet of diet sugar- but I tried it, a real PITA and not my preference. So I order from Canada. Still expensive. I also have OLP. ELP, and LIchen Sclerosis in my lady bits. I, too, need regular dilations, so far 8 of them, a far cry from your soldiering. What a trooper! Glad you are so even keeled and upbeat about it. This was a great PSA for those of us who can learn from your post. I also need cervical surgery to C5-6 (maybe 4-T1 but worst is C5-6 which is exactly where the plating would go for an ACDF. Only one of 3 surgeons suggested posterior, but even with that, could cause more swallowing issues than I already have. One top notch ns said my swallowing would never be the same..I was grateful to hear his unbiased view. It took a long time to find someone who would say anything about how it would affect my swallowing. Since this is a rare condition, no one cold even tell me if they had worked on such patients before. Hoping for more research, or at the very least clinical studies -but one I knew about at Northwestern funds were slashed. I tried to write to the Senate and Congress to explain why so necessary, but needs to have so many more voices behind us. So many rare diseases, so little funds..