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Recently diagnosed with a NET in my middle lobe of my right lung.
Neuroendocrine Tumors (NETs) | Last Active: Aug 1 5:40pm | Replies (19)Comment receiving replies
DIPNECH and lung NETs typically do have somatostatin receptors which is why I had the DOTATATE scan, but not all people have them and as it happens I do not or so I’m told. Having said that, the fact that octreotide is still effective makes me think maybe I have a low level of receptors but not enough to make the scan effective. ??? Just my thought.
Replies to "DIPNECH and lung NETs typically do have somatostatin receptors which is why I had the DOTATATE..."
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All very interesting. Just goes to show that all of our bodies different.