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Recently diagnosed with a NET in my middle lobe of my right lung.
Neuroendocrine Tumors (NETs) | Last Active: Aug 1 5:40pm | Replies (19)Comment receiving replies
I had no idea that DIPNECH did not have any somatostatin receptors. Thanks for sharing.
Replies to "I had no idea that DIPNECH did not have any somatostatin receptors. Thanks for sharing."
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DIPNECH and lung NETs typically do have somatostatin receptors which is why I had the DOTATATE scan, but not all people have them and as it happens I do not or so I’m told. Having said that, the fact that octreotide is still effective makes me think maybe I have a low level of receptors but not enough to make the scan effective. ??? Just my thought.