Increasingly Difficult to Accept Peripheral Neuropathy

Thought this was interesting...

I would like to add something else for consideration. I also have PN in my feet and ankles and take the much hated drug Lyrica for the discomfort. I read the posts here and understand that everyone is on their own journey with PN. I was only diagnosed earlier this year but knew what is was about 1 1/2 yrs ago. My thought is that the bulk of research dollars goes to heart and cancer research and until neurology research is well funded nothing will change. I disagree agree with wishing our doctors would just come clean and say "sorry no real help for you" but I think that goes against their training. I do think that it is each of our responsibility to come to grips with the knowledge that there is currently no cure and whatever bandaid we use (exercise,pain meds,massage,etc) is going to have to be enough and get on with our lives. Some days that bitter pill is easier to swallow than other days. Today I am happy to be clear of mind and intelligent enough to hold up my end of a conversation. My girlfriend's husband was just diagnosed with early onset dementia. Please remember to be thankful at least once a day

Good-oh! As a school boy in the US i was down graded for spelling colour and harbour, too much Dickens I guess, but Whilst?-I envy!

Many moons ago a very eminent neurologist whilst trying to discover a problem I was having at that time came up. When he spoke to me what he said was in life there are simply things that we don’t have an answer or a name for not yet with peripheral neuropathy, I feel pretty much the same. I accept it I don’t like it and I’ve checked in England and I often go to the mayo clinic to see what if anything is out there so again zilch. I seldom if ever read medical ads preferring as I said earlier the advice of Doctor and looking into research let me know if you have any better luck than me thank you Margaret

lol having spent a lot of time in the US I actually understood what you just said good for you with regard to the spellings.

This thread has me laughing. It's reminded me of something my Denver writing coach said to me once: "You're a good writer, Ray, but your voice say to me you've spent too much time reading 19th century British literature." 🙂

Absolutely spot-on, my great passion is to go to the gym daily and do Aqua aerobics. It’s the one place where I can move as I want as fast as hard as I want and the cold water just invigorates so yes you’re absolutely right. Don’t focus on what you can’t look at what you can thank you

The question I would ask is why is it almost always the elderly where the greatest amount of money is made by the scammers. There can only be one answer, we are not listening enough listen to your younger members of your family. Listen to what’s on the news Listen to what your doctor says And equally importantly listen to your gut instinct if it sounds too good to be true then the likelihood is it is too good to be true good luck.

I'm always looking for more information on different ways to vet all of those different neuropathy cures. I only have the numbness but I know the pain for others can be pretty bad to say the least and it's easy to fall for something that may offer some relief. The Foundation for Peripheral Neuropathy has been doing a lot of rework on their website and I noticed a new article that you can print out easily or save to your computer.

-- Vetting Information on Peripheral Neuropathy:
https://www.foundationforpn.org/wp-content/uploads/2025/01/VettingPNinfo.pdf

I empathize and support you. It is difficult to accept the many changes that occur from Neuropathy. I hate having it. I have experienced many significant changes in walking and balance in the last 10 years. HOWEVER, even though I occasionally get into self-pity (poor me!), most of the time I focus on gratitude. What I am grateful for. I can still walk with my walker and I seem to be able to manage my pain- feet at night burning up or feeling so cold they might break off- putting socks on-taking them off, numbness in ankles and legs up to my knees, by practicing an "attitude of gratitude!" "What I practice, I become!" I wish you the best. Practicing acceptance will eventually help you cope better!