← Return to Increasingly Difficult to Accept Peripheral Neuropathy

Discussion
fisbo avatar

Increasingly Difficult to Accept Peripheral Neuropathy

Neuropathy | Last Active: Aug 10 12:43pm | Replies (233)

Comment receiving replies
Profile picture for scain @scain

I would like to add something else for consideration. I also have PN in my feet and ankles and take the much hated drug Lyrica for the discomfort. I read the posts here and understand that everyone is on their own journey with PN. I was only diagnosed earlier this year but knew what is was about 1 1/2 yrs ago. My thought is that the bulk of research dollars goes to heart and cancer research and until neurology research is well funded nothing will change. I disagree agree with wishing our doctors would just come clean and say "sorry no real help for you" but I think that goes against their training. I do think that it is each of our responsibility to come to grips with the knowledge that there is currently no cure and whatever bandaid we use (exercise,pain meds,massage,etc) is going to have to be enough and get on with our lives. Some days that bitter pill is easier to swallow than other days. Today I am happy to be clear of mind and intelligent enough to hold up my end of a conversation. My girlfriend's husband was just diagnosed with early onset dementia. Please remember to be thankful at least once a day

Jump to this post


Replies to "I would like to add something else for consideration. I also have PN in my feet..."

I think the day I got my PN confirmation from neurologist at Mayo Clinic was key for me. She was blunt … “You’ve got PN from your Type 3c diabetes. I’m sorry, there’s nothing that will make it better”. It was harsh, but put me on road to acceptance and being able to steer clear of all the scam advice on social media that says a miraculous cure is NOW available. I believe in the power of the placebo effect, but most of this nonsense just makes me angry …. Duping those most desperate.