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Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 2 days ago | Replies (333)Comment receiving replies
Replies to "Good morning, @hanya. Thank you for such a sweet reply. Having gone through and survived my..."
I was phlobotomized many times! I took HU FOR ALMOST TWO YEARS!!
Reduced need for nasty phlebotomy but did not help burning skin ! Spleen did not decrease and blood numbers were still high !
Started taking JAKAFI! About a year ago! Took 10mgs twice daily! In four five months! It crashed my numbers down below minimum range ! Became fatigued and anemic!! Doc reduced JAKAFI BY HALF !
Taking 5 mgs twice daily!
Controls skin burning! Keeps all numbers steady !
Now ! Up to me now when I go back to YALE TO CONFIRM MF 🥵needed eye surgery so waited ! For BMB . My understanding is that my treatment will not change even if MF IS CONFIRMED with BMB !
My QUESTION IS ! Does BMB GIVE CERTAIN PROGNOSIS?? Another words , how much time do I have !!? Going to my local onc/hem in few days !
Lori !! Thank you again for your prompt response
You are an ANGEL