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Hi Josk,
I have a lead that Brigham & Womens Pain Management in Boston might have a course of treatment for my very painful fibrosis. I'll find out more tomorrow. The fact that after-radiation care lasting for years as needed wasn't offered by the hospital treating me really burns me up. Now, I have to search out my own diagnosis, determine the treatment needed, and find the provider. Good luck to you. Let me know if you want the B&W Pain Mgmt contact info.
Steve

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Replies to "Hi Josk, I have a lead that Brigham & Womens Pain Management in Boston might have..."

Hi Steve
Unfortunately, I reside in Toronto - and Boston is not viable.
I have an appt with the doctor at the Late Effects of Radiation Clinic in PMCC next week - and will take it from there.
I don't have pain in with my severe neck fibrosis - except for stiffness in neck and jaw areas (I do have myofascial therapy every two weeks and I do jaw and tongue exercises every day - in the hope that it will delay the deterioration).
Lately, I find that my swallowing is getting worse - in that I have to tilt my head backwards so that food or liquid does not come out through my nose, and also feel numbness in lower jaw, and also tend to drool more often.
In mid 2020 when I was diagnosed - I was told that these are the late effects of radiation - not getting my hopes up!! but .......
Take care !!