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PMR at a young age

Polymyalgia Rheumatica (PMR) | Last Active: Aug 1 8:55am | Replies (11)

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Profile picture for petermccarville @petermccarville

@jfannarbor . I too might be a person who has had PMR off and on since my 40s (20s? 30s?). Currently 63 y.o. and diagnosed in April 2025. Have tapered from 15 mg at start to now at 9 mg, soon to be at 8 mg. Can you tell me about your Kevzara journey? I am hoping to get it approved and start in the near future. BTW, I have EDS (Ehlers Danlos Syndrome) which is punctuated with odd pains in soft tissue. Have had this my entire life and it has explained lots of my pain history (only put this together in the last few years). I am curious how many PMR patients have EDS. Nothing in the literature on a connection.

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Replies to "@jfannarbor . I too might be a person who has had PMR off and on since..."

I started Kevzara in October last year, had to stop due to Total Hip Replacement surgery in December and have reduced my prednisone from 15 mg / day to 2.5 mg per day. The plan is to get to zero prednisone in the near future. Kevzara seems to be working. I am also taking Tylenol about 2000 to 3000 mg per day.