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Scar tissue after knee replacement

Joint Replacements | Last Active: Oct 10 8:31am | Replies (1550)

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@kneeproblem

I wish my surgeon would do that procedure for me but he says no it won't work have to open up the knee and do another replacement I told him I will not do that again he just said ok see ya later. I have tried for a second opinion but no o e will talk to me until 1 year is up. I am lost at what to do

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Replies to "I wish my surgeon would do that procedure for me but he says no it won't..."

@blessangela2019 Don’t give up on finding a second opinion. I had the arthroscopic lysis of adhesions procedure done 8 weeks ago at 8.5 months. The PT routine afterwards is brutal - but seems to be working. My original surgeon offered it and my second opinion doc said no - revise. I went with original doc. I’m in Texas in a town of 100K people north of Houston.

Dear knee problem (and all) -

I am starting to believe that there are basically two kinds of people with post TKR problems. The minority (unfortunately) are those
who either don't talk about it with others or who have stopped out of frustration. In the course of over 3 years of my own struggles
(which are not over), I've been inplaces of dark despair - including times I thought this was some sort of "fate" I just needed to "accept"
(and I've actually gotten "that talk" from two of the three surgeons - not the latest, but I'm expecting that pretty soon). You'll all hear
something similar at the point your current surgeon is looking to "cut you loose" (not wanting toinvest any further time in something he
doesn't see paying off for him). It mostly goes... "there are times when these surgeries don't work out as well as we expect... and we're really not sure why, but at some point you as the pateint has to accept this and move on with their life". When I hear that, my question
is always - would YOU accept this and do you realize that this leaves me with not much of a life at all ?

You will notice than in about the first year after a TKR, other surgeons are gun-shy at "getting involved" considering this as somehow
"being the last surgeon's knee". Once the last surgeon custs you loose (ususally well after any intervention could do you much or any
"good")... it magically becomes "YOUR knee" once again.

Thanks LKinny for your additional info on X10. Weird that it's so difficult to get answers out the company and too bad that people
who live anywhere but the Midwest (or Florida) don't have access to the machine pretty much peroid. For me (if I am going to get any access) I will need to make about a month's long pilgramage to Michigan ('course I guess it's closer than Lourdes). The good news is that this (X10) is that it is approved for Blue Cross/Blue Shield - but only in Michigan. At some point - I don't think "cost" (of any kind)
enters into the equation. Most of us would mortgage our houses to raise the money if we thought this (or anything) would help.

If you (all) think about it - What kind of country's medical establishment would allow people to do hundreds of thousands of these
surgeries without a known (or at least actively researched) game-plan for the large numbers of people with difficult and downright
failed recoveries. Per my previous (borrowing from JFK) "Success has a thousand fathers - while failure remains an orphan". We
are those "orphans" - but do we have to be "quiet orphans" and so much more easily swept under the rug of all this surgical financial
success ? Personally, I don't think so and I encourage you not only to speak out in this and similar forums, but while you're at it maybe
write your senate and congresspeople. Honestly... these efforts to make ourselves heard may not end up helping us (or helping is much), but could pave the way toward better research, more responsibility being assumed by surgeons (other than just for making sure
no infection develops which could be linked to their surgery and to make sure the surgical incision heals proeperly). As it stands now -
that's about all we can expect and if you think about it - WE have allowed this "paring down of responsibility for our long term recovery"
to become "the legal standard". If we do not assume some responsibility for "changing this back to something more reeasonable", do
you really think this will happen ? Are there nearly enough empathetic surgeons who will take a little less of the substantial fortune
thrown their way and spend a little more of their time (which will cur down on the numbers of surgeries they can "get done") to make
a difference - or does this have to be legally mandated ? Unfortunately, I'd have to say they will do this when they are essentially forced to (and not before).

Please feel free to ask me any questions and to share your experiences - I want to learn something new (if I can) everyday.

Thanks to you all - and my best !

John

@kneeproblem That may be true of many doctors. I did not look into this before so I don't know if my surgeon would have done it sooner, but at this point, I am more than a year out from having the TKR. Frankly though, I am getting nervous about having the lysis done Maybe I shouldn't mess with what's really not that bad.
JK