Can anyone share their experience with ProACT (an AUS)?

You do not mention whether you had Salvage radiation. That can make ProACT not work well. A urologist at a meeting a couple of weeks ago, said he tried ProACT on a lot of patients when it first came out. It failed the ones that had radiation because radiation hardens the urethra making ProACT less effective.

I had PROACT surgery at Mayo Clinic in Phoenix on March 25 of this year after 20 plus years of incontenance and I am going back for the 2nd adjustment this Friday the 18th. of July I have gone from 6 Tena overnight pads to 2 per day and really apreciate what this surgery has done for me. I am on my feet a lot plus I try to get in 10,000 steps per day per my heart DR.

I had a horrible experience with the ProAct balloons. I was diagnosed with prostate cancer in August 2022. I underwent a prostatectomy in November 2022 and then 37 radiation treatments that ran March through May 2023. Before the radiation, my incontinence had cured. Post radiation, I had minimal stress incontinence. I did not have to wear pads; however, I would keep an extra pair of underwear handy just in case I dribbled a little during strenuous activity. This is my point where I should have left well enough alone! A local urologist in Kansas City recommended the ProAct balloons so that I could be completely dry. I opted to have these implanted in August 2024. After several adjustments (performed monthly), I was completely dry. In late December 2024, I noticed burning when I urinated. I mentioned this during my January 2025 appointment. The urologist responded that I needed to be scoped immediately. He performed the cytoscopy (scope) and found that both balloons had eroded through my urethra at the bladder neck. He explanted/removed the balloons a few days later. He determined that the erosion was due to my prior radiation treatment. After he removed them, I had a foley catheter for a week while the erosions healed. After the foley was removed, I was left with TOTAL urinary incontinence. I went through 10 to 12 pads a day even while wearing a Cunningham clamp on my penis (which is incredibly uncomfortable). During the night, I wore a Depends diaper with an additional pad inside the Depends. This left me no other choice than to have an AUS implanted. Dr. Elliott of Mayo - Rochester performed the AUS surgery on me on May 5. I just had the AUS activated this week (July 29). As you can see, I don't have much experience with the AUS yet (2 days), but I only wore 2 pads yesterday. Gentlemen BEWARE - If you have had radiation, I would NOT recommend the ProAct balloons. I was told that these should last my lifetime. They only lasted for 4 months. Total urinary incontinence for an active person (I am 55 yo) is horrible. I wish, every day, that I had never even considered the ProAct balloons.

I had a horrible experience with the ProAct balloons. I was diagnosed with prostate cancer in August 2022. I underwent a prostatectomy in November 2022 and then 37 radiation treatments that ran March through May 2023. Before the radiation, my incontinence had cured. Post radiation, I had minimal stress incontinence. I did not have to wear pads; however, I would keep an extra pair of underwear handy just in case I dribbled a little during strenuous activity. This is my point where I should have left well enough alone! A local urologist in Kansas City recommended the ProAct balloons so that I could be completely dry. I opted to have these implanted in August 2024. After several adjustments (performed monthly), I was completely dry. In late December 2024, I noticed burning when I urinated. I mentioned this during my January 2025 appointment. The urologist responded that I needed to be scoped immediately. He performed the cytoscopy (scope) and found that both balloons had eroded through my urethra at the bladder neck. He explanted/removed the balloons a few days later. He determined that the erosion was due to my prior radiation treatment. After he removed them, I had a foley catheter for a week while the erosions healed. After the foley was removed, I was left with TOTAL urinary incontinence. I went through 10 to 12 pads a day even while wearing a Cunningham clamp on my penis (which is incredibly uncomfortable). During the night, I wore a Depends diaper with an additional pad inside the Depends. This left me no other choice than to have an AUS implanted. Dr. Elliott of Mayo - Rochester performed the AUS surgery on me on May 5. I just had the AUS activated this week (July 29). As you can see, I don't have much experience with the AUS yet (2 days), but I only wore 2 pads yesterday. Gentlemen BEWARE - If you have had radiation, I would NOT recommend the ProAct balloons. I was told that these should last my lifetime. They only lasted for 4 months. Total urinary incontinence for an active person (I am 55 yo) is horrible. I wish, every day, that I had never even considered the ProAct balloons.

That is eerily similar to my situation. I had RP in 2015 and radiation with no incontinence. in May 2024 I had surgery just to clear a restriction in my ureathra. Total incontinenece after that Wear clamp in day and, overnight Depends w/extra pad and, change 5 times a night.
Two docs want AUS. Third Doc wants ProAct.
Have been procrastinating what to do. Seeing 4th Doc at Johns Hopkins on Monday.
I am AUS hesitant because who wants to push a button for the rest of your life and, who will, when you can't ?

I certainly would not recommend ProAct in your situation! As far as your question, I already feel that pushing the button, while somewhat awkward and inconvenient, is a helluva lot better than being wet all of the time. You will have to wear a MedicAlert, because you do not want to be cathetered if you have an emergency (ex: heart attack) unless they deactivate the AUS, which is simple to do. Dr. Daniel Elliott at Mayo in Rochester has performed more AUS surgeries than anyone in the world.....well over 2000. It might be in your interest to set up an appointment with him. He will do initial video appointments (he did with me anyway two times). Good luck to you. I understand and empathize with what you are going through.