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EMG - "MILD AXONAL NEUROPATHY"

Autoimmune Diseases | Last Active: Aug 1 12:45pm | Replies (16)

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You're definitely not alone! I've felt alone as of late but then remembered that Mayo has this supportive type of environment. I'm glad I clicked the link. I've got Axonal and Coronal Chronic Inflammatory Demyelinating Polyneuropathy or CIDP. Not fun!! Waiting for the next round of specialists. My body is reliable about 20% of the time, so it seems. Seropositive rheumatoid arthritis, Hypercontractile esophagus, PLMD, chronic Inflammatory sinus disease (going to see a new ENT specialist this afternoon in regards to that surgery coming up) , Fibromyalgia, Anterior Rectocele, Cystocyle, Perineocele, Spastic pelvic floor syndrome, Migraine, DDD all throughout my spine with some angry herniations, Intractable pain, and unfortunately many more comorbidities. You're not alone. I was just referred back to a GI specialist at Northwestern and am scheduled to see him in May...he added me to the wait list fortunately. I'm told that the only place that can accommodate my case for pelvic floor pt is within some outpatient pt center at Northwestern. Going to make those calls to get on the books. I've got more to share but my body is telling me it's time for a little rest before the new ent surgeon. Wish me luck!

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Replies to "You're definitely not alone! I've felt alone as of late but then remembered that Mayo has..."

Hope you get moved up into a cancellation spot and get seen sooner!!