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Internal body vibrations all night

Neuropathy | Last Active: Nov 26 12:15am | Replies (62)

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I feel your frustration. I have had my vibrations for 6 months, and am in the black hole of medical apathy. I feel like a human petrie dish. Also am experiencing numbness and tingling in hands and feet. Stopped taking meds as it was just a “might as well” prescription process that produced more problems ( brain fog, dizziness, extreme tiredness) than I wanted to take on. Sick of the blank stare when I go to another “specialist” when I describe these night vibrations.
I even made a phone appointment with the Mayo Clinic (our chat room host), and the person I talked with said she had never heard of this, and could not find reference to it in their data base.
Woke up this morning in tears because the vibrations wake me every night just when I go into deep sleep, and persist until I am pretty much awake. When I get up, I feel beaten up from the inside. Made an appointment with a neurologist, but the soonest available appointment is in 6 months. Beginning to think that this is to be my life.
What in the world is going on with health care in this country?

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Replies to "I feel your frustration. I have had my vibrations for 6 months, and am in the..."

Hello,
I’m so sorry for what you’re experiencing and I hope you’ll find something that will help.
I was diagnosed and confirmed with axonal large fiber peripheral neuropathy February of this year. It’s absolutely progressing and there’s no cure for it but hit and miss treatments to slow it down if we find the right one. I have burning, tingling, numbness and pain.
During the night, all hell breaks loose as if I am a different person than the day. However, I’ve also had essential tremors for some years now and when I have sudden things occurring because of peripheral neuropathy, I notice that the tremors become quite pronounced. Have you ever been tested for tremors? I’m just wondering.
I wish you the best.
Take care and have a serene weekend,
gus