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DiscussionNegative Turn in a Long Journey
Pancreatic Cancer | Last Active: Oct 1 5:03pm | Replies (102)Comment receiving replies
Replies to "@gamaryanne there are new chemos in trials being offered now. I was offered one at UCLA..."
@mnewland99 - came across this very informative thread as I am also dealing with newly found peritoneal mets from PDAC... do you recall what the UCLA trial targeting CLDN 18.2? Thank you!
I am currently on G/A but it hit my labwork so hard and cause anemia/fatigue. Praying for everyone in this thread!
@mnewland99 thank you for your kind words. You are right! Stage IV is just a label and many have made it past 5 years so we will too!!
As for 6236 trials, I joined an online group of 6236/9805 trial participants when I began the trial July 2024. It seems to be having incredible results for NSC lung cancer. The PDAC patients overall seem to get stability primarily, and some shrinkage. The side effects are very uncomfortable and unsightly but with phase 3 they have been prescribing drugs upfront that seem to curtail the visible effects. I was so glad to do it for 6 months as it allowed all my labs to be perfect again and physical activity a breeze. In hindsight, I may have left it too soon.
What is the rational for not removing the appendix? In one of my surgeries they removed gall bladder proactively.