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Profile picture for Lori, Volunteer Mentor @loribmt

Hi @anthea29, I think we all get stuck in our own headspace for a time after going through something traumatic like our cancer journeys. Recovery from events like this can take its ever-lovin’ time. We go from all-out survival mode to ‘just go home and live your life’… well, it’s not that easy to coast into survivorship mode!

I felt the same way for a time after months of aggressive chemo for AML and then the bone marrow transplant. While all the tests revealed early success, there was always that little gnawing around the edges of confidence. I remember the day when that changed, when I had an Ah-Ha moment!! I even took a selfie to help hold onto that feeling of exuberance! But that moment was almost a full year after the BMT before I felt that I could truly believe remission was possible.

You’re still at a very early point in recovery; Memories and experiences are still fresh. Could the cancer return? Possibly..but what if it doesn’t? In the meantime it’s precious time wasted worrying about “what if”… Life holds no guarantees. But we’ve been given a 2nd chance with the amazing medical procedures that weren’t possible even a few years ago.

I’d like to toss this out for you and @shop516…instead of waiting for the other shoe to drop, wait for your Ah-ha moment! Then post a picture in this discussion I started a few years ago. It’s for those of us with transplants (of any kind) where we can post pics of moments that wouldn’t have been possible without our life giving transplant!

~Snapshots of hope! Life on the other side of transplant:
https://connect.mayoclinic.org/discussion/snapshots-of-hope-life-on-the-other-side-of-transplant/
Congratulations on your CAR-T … wishing you a long and happy life ahead! How often do you return for follow-ups with your team?

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Replies to "Hi @anthea29, I think we all get stuck in our own headspace for a time after..."

Love your thoughts. I am doing quarterly follow ups until February. I have been in a 2 year clinical trial clinical trial. I feel like the most cared for patient in the history of medicine.

Thanks Lori! Wise advice. I have worked at keeping a positive attitude all along and do feel it has helped me with healing.

Returned on day 30 and will return to them on day 100 to BMT but visit my oncologist (or nurse practitioner) every week for now. They are all part of my team.