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EMG - "MILD AXONAL NEUROPATHY"

Autoimmune Diseases | Last Active: Aug 1 12:45pm | Replies (16)

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Yes - two MRIs when I started exhibiting symptoms as mine aren’t neatly defined and my rheumatologist wanted to initially rule out MS. I had one right before Covid and then one after my first bout of Covid. Also of the spine. I know the neurologist ran bloodwork looking for certain markers before the EMG and that all came back looking good. Not diabetic. Not exposed to any toxins as far as I know. Former smoker (back when I was young and stupid), I drink wine once or twice a week but no hard liquor and do no recreational drugs of any kind. Is it too late at 57 to start? Kidding …

My autoimmune diagnosis came at the end of 2019 and while I didn’t have any issues with the vaccine itself, my first bout of Covid left me with blood clots and lung scarring. I got it 3 more times after that. I am now on blood thinners for life after a second blood clot. My doctor thinks Covid definitely made my underlying condition worse as we seemed to have things under control for a while, and now no matter what drug we try, no such luck. I’ve developed an essential tremor as well which the neurologist says is separate to the rheumatological condition. Since my immune system doesn’t work well plus I’m on multiple immune suppressants, I no longer get vaccines or boosters, I go into the hospital for Covid infusions.

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Replies to "Yes - two MRIs when I started exhibiting symptoms as mine aren’t neatly defined and my..."

@pm56
I laughed when you said it may not be too late to start recreational drugs (I just turned 56 and also used to smoke when young and stupid, don’t do drugs, don’t drink except for occasional glass of red wine). Some days I would t mind escaping my body for a while. 😉

I have had heart issues since Covid shots and now EKG shows old infarct! Episodes of difficulty breathing and chest pain when I woke up was very scary (I’m female and my mom died of a heart attack at 67…I am a single parent and sole provider of a teen son)!

I had my rheumatologist do testing years ago and a couple tests years apart showed I have anti-phospholipid syndrome. Have you ever been tested for that? I only found out how this syndrome plus Covid shots caused problems for me related to my heart/lungs.