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DiscussionEMG - "MILD AXONAL NEUROPATHY"
Autoimmune Diseases | Last Active: Aug 1 12:45pm | Replies (16)Comment receiving replies
Replies to "What other medications are you receiving. Are you on any disease modifying drugs?"
Oh yes, there’s been no shortage of drugs! I didn’t want to start on biologics right away back then as I’d heard that once you start you can never get off, so I started slow on Sulfasalazine hoping that would be enough, then added Methotrexate, then added Humira. Switched doctors and she added Medrol as my symptoms were getting worse but the biologics weren’t working as well as I needed them to. Then we switched the Humira for Enbrel … then for Orencia … then for Rinvoque … then for Rituxin … then the brand new Consentyx infusion. I waited 18 months and tried a slow taper off the Medrol which led to severe flare and a wheelchair. Next month we’re going to try Remicade. If that doesn’t work, then I think I’m officially out of options as I developed a blood clotting condition after Covid so what’s left isn’t available to me.