← Return to what to expect when starting prednisone for PMR

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Profile picture for John, Volunteer Mentor @johnbishop

Hello @tonimcbride, Welcome to Connect. My first time with PMR I also had lived with the pain and stiffness for awhile until it got so bad I couldn't walk and had to use a wheelchair for my appointment with the rheumatologist. I had an appointment in the morning and they drained some fluid from my right knee and I was diagnosed with PMR and given a prescription for 20 mg prednisone. We filled the prescription at the Mayo pharmacy at noon and I took my first dose at lunch. We waited for a couple of hours for a follow up appointment with the rheumatologist that afternoon. I was amazed that I was able to walk out of the appointment pretty much pain free. After that I pretty much had some mild pain and stiffness when I got up in the morning and took my dose of prednisone which would go away within an hour or so. The rheumatologist suggested I keep a daily log of my level of pain when I got up and my dose for the day so that I could use the log to help with my tapering schedule.

I have had 2 PMR flareups with the first one lasting 3-1/2 years and the second one lasting 1-1/2 years. I think movement and stretching of some sort really helps whether it's gardening, walking or exercise. I just had to learn how much I could handle without giving myself more pain the next morning. @dadcue has started some great discussions for learning more about PMR and what helps. Here are just a few that I think you might find helpful:
-- History of PMR -- Interesting video presentation from past to present.
https://connect.mayoclinic.org/discussion/history-of-pmr-interesting-video-presentation-from-past-to-present/
-- Prednisone love/hate support group: https://connect.mayoclinic.org/discussion/prednisone-lovehate-support-group/
-- Comprehensive Overview Of PMR: https://connect.mayoclinic.org/discussion/comprehensive-overview-of-pmr/

How is your PMR pain in the morning if your activity during the previous day was light?

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Replies to "Hello @tonimcbride, Welcome to Connect. My first time with PMR I also had lived with the..."

Hi John, thanks for your reply. If activity the previous day was light, the pain is pretty minimal. If I pushed it the day before I will have more stiffness and pain. I also have a lot of fascial pain: behind the knees, in my right forearm, so the doctor suspects I may have something else going on in addition to the PMR.

Thank you for posting the link to the presentation.