I'm sorry I (or rather my husbsnd who is the patient) don't have personal experience with cabozantinib but I had a question. Typically with nets they combine Temozolomide with capcetibine, a regimen known as captem. Did you also take capcetibine? The 2 drugs together are shown to be pretty effective for nets and this regimen has been approved and in use longer than cabozantinib.