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EMG - "MILD AXONAL NEUROPATHY"

Autoimmune Diseases | Last Active: Aug 1 12:45pm | Replies (16)

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@pm56
Have you had MRIs of your brain, cervical spine and lumbar spine to see if your central nervous system is affected and causing some of your symptoms in your lower body? Did you have neuropathy bloodwork to check for abnormalities/deficiencies? Are you diabetic, do you drink alcohol/smoke/vape or have you been exposed to any toxins? Certain viruses can affect the nervous system so it would be good to check for viral causes. Did you have Covid or similar symptoms in 2019-2020 at the start of your symptoms and have any reactions to the Covid shots?

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Replies to "@pm56 Have you had MRIs of your brain, cervical spine and lumbar spine to see if..."

Yes - two MRIs when I started exhibiting symptoms as mine aren’t neatly defined and my rheumatologist wanted to initially rule out MS. I had one right before Covid and then one after my first bout of Covid. Also of the spine. I know the neurologist ran bloodwork looking for certain markers before the EMG and that all came back looking good. Not diabetic. Not exposed to any toxins as far as I know. Former smoker (back when I was young and stupid), I drink wine once or twice a week but no hard liquor and do no recreational drugs of any kind. Is it too late at 57 to start? Kidding …

My autoimmune diagnosis came at the end of 2019 and while I didn’t have any issues with the vaccine itself, my first bout of Covid left me with blood clots and lung scarring. I got it 3 more times after that. I am now on blood thinners for life after a second blood clot. My doctor thinks Covid definitely made my underlying condition worse as we seemed to have things under control for a while, and now no matter what drug we try, no such luck. I’ve developed an essential tremor as well which the neurologist says is separate to the rheumatological condition. Since my immune system doesn’t work well plus I’m on multiple immune suppressants, I no longer get vaccines or boosters, I go into the hospital for Covid infusions.