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Lobular Breast Cancer: Let's share and support each other

Breast Cancer | Last Active: Sep 23 5:01pm | Replies (556)

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Thank you for the reply. I am/have? HR positive, HER negative and I am 64 years old. You have given me so much to research. I don't think an immunotherapy is with the chemo. I saw the oncologist yesterday after results from body and bone scans. They have scheduled port surgery for this Tuesday and start 16 weeks of chemo beginning Aug 12
Then double mastectomy and begin reconstruction - Cancer/tumor in one breast and suspicious mass in other)
Then radiation
Then Hormone blocker and Kisqali.
I wonder if this is the correct order treatment. ILC is hard to pro and con.

I am not sure what the stage is. It was 2A before the body scan?
I am going to the NCCN site now to read. My nurse navigator also recommended this site.

Thank you for sharing with me. (tears) Best wishes and thoughts to you!

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Replies to "Thank you for the reply. I am/have? HR positive, HER negative and I am 64 years..."

Hello Mjorskir:
Thank you for sharing more info and wow! You have a lot going on.
First, for me and most people, the port install is not bad at all. Mine was under conscious sedation with a very cheerful surgeon. I'm sure it will go well.
Second, whenever my port is accessed (for chemo or regular blood test), I put on lidocaine/prilocaine cream. I put it on about 1 hour and 15 minutes before the scheduled port access. Your doctor or nurse can prescribe it for you. Use a generous nickel-size dollop o top of your port and then put a Tegaderm bandage over it. Your nurse can give you Tegaderms or you can order them online. Do not rub the cream in. Make sure your bra strap is moved down so the strap does not interfere with the cream. This cream will greatly reduce or eliminate any pain when the port needle is inserted.
Next, ask your doctor or nurse what your stage is. You can read online about what the TMN staging signifies.
Fourth, there is a good resource online with free educational videos on all aspects of breast cancer and treatment. It is Yerbba.com. The doctor in the videos is a breast cancer oncologist and a professor at University of Michigan medical school. Each video is fairly short and well done. You can go to that site and get a great deal of information that is current. She has a video or two that explains the TMN staging.
Fifth, the brand name for immunotherapy that you may receive is called Keytruda, the scientific name is pembrolizumab. The 'mab' at the end of any med means it is a monoclonal antibody. Again, you can read online about the many studies and also watch the Yerbba videos. If your doctor does not use Keytruda, ask about it, why or why not.
Sixth, I can imagine that your nurse navigator has a lot of great tips for you. She sounds like a great resource. The chemo nurses will also be super helpful and have many practical ideas and tips. You will get to know them and they will take excellent care of you. They will administer pre-meds before each chemo session prevent nasty side effects such as nausea and diarrhea. I never had any nausea during the neo-adjuvant (pre -mastectomy) state of chemo.
Seventh, use Mepitel Film for your radiation. It is a wound dressing that has proven highy effective in clinical trials to greatly reduce radiation dermatitis and moist desquamation. Ask your radiologist about it. If your radiation clinic does not provide it, ask them to tell you where you can buy it online. It will be worth it. Enlist your nurse navigator on this project. For info, Google 'mepitel film breast radiation'.
I can't comment on the order of your treatments as I am not a medical professional. But nothing sounds wrong about it.
You can do this! It's all overwhelming now, but you can handle it. Educate yourself and ask lots of questions. Write your questions down and take them with you to your appointments. If you are 2A you are at a very early stage and have every excellent chance of a full recovery. So go for it! You are just a young lady at age 64. You've got this. You have a lot more life to live!
Please accept my very best wishes for a successful treatment and great life afterwards!