I don't think they give it in the arm, do they? I had mine in my hip. Three shots. Two were fine, the last one the nurse hit SOMETHING that caused agonizing pain where I had to sit and wait about half an hour before I could even walk and then it was sore for about two weeks. Make sure whoever gives you the shot knows what they're doing wherever they give it to you!!!
Sorry about the original post, my choice is indeed hip or arm. I've had 3 Lupron shots so far, in arm muscle, no pain or problem, except that the lump from the shot has not gone away in any of the three shots. doc says not a problem. Should I continue in arm or try the hip?
The hip has no side effects. Unless you press right into where the needle was put in. After six years of shots, I never even noticed anything when I was put in my hip
My husband has gotten Lupron injections for many years. They have always been in his hip. I have never heard of them being put in the arm or stomach, or just under the skin anywhere.
Hi @lag Would you be able to enable private messages in your settings? I tried sending you a private message but it won't go through. My father is now castrate resistant and I just have a few questions about your husband's journey with castrate resistance. Thank you!
Abdomen tends to be easiest. Pinch an inch of tissue to firm it up after wiping with alcohol wipe and stick it in at a 90degree angle. Relax the pinch a bit while injecting so as not to create pressure to force the fluid out.
Hi @lag Would you be able to enable private messages in your settings? I tried sending you a private message but it won't go through. My father is now castrate resistant and I just have a few questions about your husband's journey with castrate resistance. Thank you!
I’ve been castrate resistant for six years. I did have one metastasis zapped on my spine. I’ve been undetectable for the last 20 months on Nubeqa and Orgovyx. 15 years with PC.
If I get another metastasis, I would get it zapped. I’ve already had surgery and salvage radiation.
The drugs we have now work quite well with people that are castrate resistant.
If you met me, you would have no idea I had cancer, I’m 77 and quite active.
I’ve been castrate resistant for six years. I did have one metastasis zapped on my spine. I’ve been undetectable for the last 20 months on Nubeqa and Orgovyx. 15 years with PC.
If I get another metastasis, I would get it zapped. I’ve already had surgery and salvage radiation.
The drugs we have now work quite well with people that are castrate resistant.
If you met me, you would have no idea I had cancer, I’m 77 and quite active.
For some reason I had it in my head that if someone is castrate resistant they do not qualify for Nubeqa? I must be wrong on that. My father is 76 and has been fighting this beast since 2002. He's had surgery, radiation, monthly Lupron injections, more radiation, failed Zytiga due to an increase in liver enzymes, and is now castrate resistant and has a few metastases. His dr. is now recommending Pluvicto. If he tolerates that well they would also start him on Xtandi after the second infusion. He is the same way, you'd never know he has cancer if you met him. He is under Dr. Kwon's care team at Mayo. I'm so happy to hear you are doing so well, wishing you continued good health.
For some reason I had it in my head that if someone is castrate resistant they do not qualify for Nubeqa? I must be wrong on that. My father is 76 and has been fighting this beast since 2002. He's had surgery, radiation, monthly Lupron injections, more radiation, failed Zytiga due to an increase in liver enzymes, and is now castrate resistant and has a few metastases. His dr. is now recommending Pluvicto. If he tolerates that well they would also start him on Xtandi after the second infusion. He is the same way, you'd never know he has cancer if you met him. He is under Dr. Kwon's care team at Mayo. I'm so happy to hear you are doing so well, wishing you continued good health.
At least a dozen people on the weekly advanced prostate cancer Ancan.org group are on it and almost all are castrate resistant.
Tell your doctor you want nubeqa instead of Xtandi. The doctor knows you know the difference maybe you can get them to give you the drug with the lesser side effects.
Pluvicto sounds like a good chance to get the cancer controlled.
Hi @lag Would you be able to enable private messages in your settings? I tried sending you a private message but it won't go through. My father is now castrate resistant and I just have a few questions about your husband's journey with castrate resistance. Thank you!
Sorry--I don't want private messages; that setting is intentional. My husband was first diagnosed and treated locally in 2005, and had his first recurrence in 2011, when he was declared to be Stage 4 after metastases were found on his spine at Mayo Rochester. I can't pinpoint exactly when he became castrate resistant, other than to say it has been years ago now, so can't tell you how things might have changed for him at that point. As for his journey so far, he has had external beam radiation, brachytherapy, several rounds of SBRT, docetaxel chemotherapy, Pluvicto, Zytiga, Lupron, and probably some other treatments which I have forgotten.
If you have specific questions about becoming or being castrate resistant, I would urge you to go ahead and post them on this forum. I am sure many who read and post here could answer your questions based on personal experience. Everyone here is generous with their time and experience, and this is a safe place to ask for information and support.
At least a dozen people on the weekly advanced prostate cancer Ancan.org group are on it and almost all are castrate resistant.
Tell your doctor you want nubeqa instead of Xtandi. The doctor knows you know the difference maybe you can get them to give you the drug with the lesser side effects.
Pluvicto sounds like a good chance to get the cancer controlled.
Yes! I’ve watched a couple of their videos on YouTube and wondered if that was you when I watched last nights meeting earlier today. I thought about popping on but some seem to knock a certain physician and we have received wonderful care from him, so I’ll just continue to watch the videos once they are posted. Good advice about asking about Nubeqa.
Sorry--I don't want private messages; that setting is intentional. My husband was first diagnosed and treated locally in 2005, and had his first recurrence in 2011, when he was declared to be Stage 4 after metastases were found on his spine at Mayo Rochester. I can't pinpoint exactly when he became castrate resistant, other than to say it has been years ago now, so can't tell you how things might have changed for him at that point. As for his journey so far, he has had external beam radiation, brachytherapy, several rounds of SBRT, docetaxel chemotherapy, Pluvicto, Zytiga, Lupron, and probably some other treatments which I have forgotten.
If you have specific questions about becoming or being castrate resistant, I would urge you to go ahead and post them on this forum. I am sure many who read and post here could answer your questions based on personal experience. Everyone here is generous with their time and experience, and this is a safe place to ask for information and support.
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I don't think they give it in the arm, do they? I had mine in my hip. Three shots. Two were fine, the last one the nurse hit SOMETHING that caused agonizing pain where I had to sit and wait about half an hour before I could even walk and then it was sore for about two weeks. Make sure whoever gives you the shot knows what they're doing wherever they give it to you!!!
The hip has no side effects. Unless you press right into where the needle was put in. After six years of shots, I never even noticed anything when I was put in my hip
Hi @lag Would you be able to enable private messages in your settings? I tried sending you a private message but it won't go through. My father is now castrate resistant and I just have a few questions about your husband's journey with castrate resistance. Thank you!
Abdomen tends to be easiest. Pinch an inch of tissue to firm it up after wiping with alcohol wipe and stick it in at a 90degree angle. Relax the pinch a bit while injecting so as not to create pressure to force the fluid out.
I’ve been castrate resistant for six years. I did have one metastasis zapped on my spine. I’ve been undetectable for the last 20 months on Nubeqa and Orgovyx. 15 years with PC.
If I get another metastasis, I would get it zapped. I’ve already had surgery and salvage radiation.
The drugs we have now work quite well with people that are castrate resistant.
If you met me, you would have no idea I had cancer, I’m 77 and quite active.
Hi Jeff,
For some reason I had it in my head that if someone is castrate resistant they do not qualify for Nubeqa? I must be wrong on that. My father is 76 and has been fighting this beast since 2002. He's had surgery, radiation, monthly Lupron injections, more radiation, failed Zytiga due to an increase in liver enzymes, and is now castrate resistant and has a few metastases. His dr. is now recommending Pluvicto. If he tolerates that well they would also start him on Xtandi after the second infusion. He is the same way, you'd never know he has cancer if you met him. He is under Dr. Kwon's care team at Mayo. I'm so happy to hear you are doing so well, wishing you continued good health.
At least a dozen people on the weekly advanced prostate cancer Ancan.org group are on it and almost all are castrate resistant.
Tell your doctor you want nubeqa instead of Xtandi. The doctor knows you know the difference maybe you can get them to give you the drug with the lesser side effects.
Pluvicto sounds like a good chance to get the cancer controlled.
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1 ReactionSorry--I don't want private messages; that setting is intentional. My husband was first diagnosed and treated locally in 2005, and had his first recurrence in 2011, when he was declared to be Stage 4 after metastases were found on his spine at Mayo Rochester. I can't pinpoint exactly when he became castrate resistant, other than to say it has been years ago now, so can't tell you how things might have changed for him at that point. As for his journey so far, he has had external beam radiation, brachytherapy, several rounds of SBRT, docetaxel chemotherapy, Pluvicto, Zytiga, Lupron, and probably some other treatments which I have forgotten.
If you have specific questions about becoming or being castrate resistant, I would urge you to go ahead and post them on this forum. I am sure many who read and post here could answer your questions based on personal experience. Everyone here is generous with their time and experience, and this is a safe place to ask for information and support.
Yes! I’ve watched a couple of their videos on YouTube and wondered if that was you when I watched last nights meeting earlier today. I thought about popping on but some seem to knock a certain physician and we have received wonderful care from him, so I’ll just continue to watch the videos once they are posted. Good advice about asking about Nubeqa.
Thank you so much!!!