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← Return to Life Expectancy with cavitary MAC
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Life Expectancy with cavitary MAC
MAC & Bronchiectasis | Last Active: Aug 4 7:25pm | Replies (68)Comment receiving replies
I had another bronchoscopy last month, culture detected Pseudomonas. Started new antibiotics, and I got referred to an ID next Monday. I have no idea if the Bronc detected aspergillus or not, not much info from the pulmonologist. SSD started pestering my pulmonologist office. Pretty frustrating but I am feeling better again. I did a few months of half vfend dose and side effects were greatly reduced. ~Rick
Replies to "I had another bronchoscopy last month, culture detected Pseudomonas. Started new antibiotics, and I got referred..."
Rick....nice to see your posts and to know how all is going for you on the journey.
I don't recall seeing how long you have been on the journey with Bronchiectasis and then the infections. How long has it been since your diagnosis with Bronchiectasis, BE.? Did they find an infection with the original diagnosis or infections started afterwards?
Barbara
Hi Rick, I was diagnosed 3 years ago with BE and my first infection was ecoli in 2022. It took 12 months to clear that out. And after my last dose and two weeks later, I had pseudomonas and has been with me for the past two years. On many occasions, it also came with aspergillus and candida or some other fungi/yeast. I took Cresemba for the fungal infection when detected; taking it for one month then not again for several months until I get another fungal infection.
Unfortunately Pseudomonas is quite stubborn, I have done IV antibiotics at 6X during the last two years. I feel great when I am on antibiotics but two weeks after, I get it again.
Just wondering if there is ever a time when there is a a month or more where folks are infection free.
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I am glad you are feeling better. The bronchoscopy seems to pick up things the sputum sample doesn't detect.