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Profile picture for mrmacabre @mrmacabre

I find it to be very frustrating when I hear about patients who've had multiple joint replacement surgeries like yourself. What do I have to do to convince my doctors that the osteoarthritis in my knees and hips is making my life miserable, and need some help.
I went in for replacement surgery on my left knee in 2018 because I had already had 3 arthroscopic procedures on it in the previous 2 years. When I woke up in the recovery room, the first thing my wife said to me was "they only did a partial replacement". I didn't really believe her at first, then the doctor came in and said once he got in there, that the interior portion didn't look as bad as the anterior, hence the partial. He said going back in and making it a total was a piece of cake.
Then he retired.
Now, every time my GP x rays my knees and/or hips, he says the same thing every single time, " the arthritis doesn't look that bad". He knows how much pain I'm in though on a daily basis, I've been his patient for almost 30 years. He has said that if it were up to him, he'd do the total on my left knee, along with a replacement of my right knee as well. My new/old orthopedist has looked at my right knee, and said I'm on my way to a total replacement, as long as I lose 30 pounds. How the hell am I supposed to lose 30 pounds if I can't even walk for 5 minutes without some help because of the pain in my feet and joints? I worked a very physical job for 35+ years driving a truck, climbing in and out of the cab 25-30 times a day, and moving really heavy objects until my body started breaking down 10 years ago. I've been heavily built my entire life, and lifted weights on days I wasn't working until almost a year ago. I'm beyond frustrated with the situation, I know there's not much they can do about the neuropathy in my feet, but osteoarthritis symptoms can be helped considerably with joint replacement surgery. Apparently our insurance provider is also part of the problem.
I'm not trying to be a jerk, I'm glad you've gotten the help you've needed, I'm just jealous of people who've gotten the help I feel I need and have basically been ignored.

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Replies to "I find it to be very frustrating when I hear about patients who've had multiple joint..."

Hi Mr. Macabre,

I am so sorry for what you are going through. You wrote:

"He knows how much pain I'm in though on a daily basis..."

Now I'm not a Dr, but my knee surgeon said that once I reached the point you're at, it's time to do the replacement. I'd find another surgeon. I look for surgeons in their mid 30s to late 40s, with a good med school/residency/fellowship pedigree, great references, and with thousands of surgeries under their belt. These surgeons are young, talented, and ambitious at this point in their careers.

As for losing 30 lbs, that should be a suggestion, not something that needs to be done ahead of surgery imo. Rehab doesn't include any impact activities, in fact you won't be able to do impact activities with new knees. I understand you're a big guy, but big guys get bad knees too and should not have to live with pain.

I would not give up Mr. Macabre. Look for a new surgeon. And if you are bone-on-bone in your knees, that is, there is no cartilage left, you should get approved by insurance.

Again I am so sorry for what you are going through. It certainly sounds to me like you need replacements. Find a new doc and get approved for the replacements.

All the best to you sir. And please let me know if you find someone who can do the surgery. And I'd fight insurance as well. Bone-on-bone with arthritis is a condition that can only be relieved long-term by a TKR, as far as I know. And it sounds like the same is true for your hip(s). I had horrible pain in my groin from my arthritic hip and only a replacement fixed it.

(Also, your history of arthroscopic procedures should tell a surgeon and insurance that it's time for a total replacement, knees and hips. I had both knees scoped twice each before my TKRs. Enough.)

Joe