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Protocol for maintenance therapy with BCG

Bladder Cancer | Last Active: Aug 12 7:38am | Replies (26)

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Profile picture for quahog @quahog

I had a NMIBC and TURBT in December’24 and then six BCG treatments ending in April. Cystoscopy in may showed no reoccurrence and five biopsies showed no CIS. My urologist however suggested a BCG maintenance program a three, six and twelve months. Just finished the first three treatments at three months and it was very uncomfortable. I am getting progressively more sensitive to the treatment and the resulting side effects are getting significantly more troublesome. Bleeding, burning while voiding, urgency at very short intervals, pain in the lower abdomen, muscle and joint pain, headache, and nausea. These last longer and longer after each session with the last one lasting over two days. I’m scheduled for a cystoscope in late August and if clear, I think I’m going to petition strongly for regular cystoscopy in place of the BCG maintenance plan. Has anyone else a similar experience.

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Replies to "I had a NMIBC and TURBT in December’24 and then six BCG treatments ending in April...."

@quahog I'm about on the same schedule as you are. Agree that with each BCG treatment the side effects are getting worse (urgency & burning especially). My PA said that BCG has a cumulative effect. Doctor hasn't said how many treatments or how long the treatment will go on. Guess it''s better than the alternative.