I had a similar diagnosis and an RP in December 2024. I was already on ADT and stayed on (degarelix) until 6 weeks ago.

PSA was consistently < 0.05, then 0.05

Yesterday my PSA reading was 0.09. This was my first reading since going off.Degarelix only six weeks ago.

My question for you is, what did your doctors do regarding your lymph nodes? I assume when you say radiation that it means your doctors targeted the lymph nodes among other areas.

My doctors have done nothing explicitly for my lymph nodes. Nothing. I went into surgery assuming they would be taken out; they were not. My doctor talked me out of radiation because he said he’s concerned about downstream cancer caused by radiation. Sounds good, except for the part where the near stream cancer is acting up because we did nothing with the lymph nodes.

When I read your post, I’m reading what I thought my post Surgery experience would be

however it is already a nightmare because my PSA is already increasing immediately after going off ADT.

My question for you is - did your doctors talk explicitly and aggressively about how to attack the lymph nodes? It sounds like there was a plan and the plan has worked.

My oncologist kept saying maybe you’re cured and I thought I was going insane because I saw the lymph nodes put up a 7 to 8 SUV uptake and thus I was almost certain that they were cancerous

So what did your doctor say about lymph nodes going into your surgery?

and for anyone reading this am I the only one who thinks it’s nuts that my oncologist and surgeon are kind of blasé about my lymph nodes?