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Lobular Breast Cancer: Let's share and support each other

Breast Cancer | Last Active: Sep 23 5:01pm | Replies (556)

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Profile picture for dolphina3 @dolphina3

Hi,
In 2021 diagnosed with5.8cm triple negative lobular invasive cancer. They did chemo first it shrunk the tumor then surgery then masectomy then radiation.
Glad they did chemo first to stop any cancer cells floating around as I must have had tumor for awhile .I was aggressive could have had lumpectomy but felt safer going masectomy route. They are still learning about lobular and TNBC every person's story is different don't be afraid to ask questions of Drs. so you can be reassured. Sending hugs.

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Replies to "Hi, In 2021 diagnosed with5.8cm triple negative lobular invasive cancer. They did chemo first it shrunk..."

Hello Dolphin3:

Wow! You and I are rare birds--we both are ILC TNBC. Our cancer is less than 1% of all breast cancers.
I like your suggestion to ask questions! That's the best way to handle these tough treatment decisions.
Sending good thoughts your way!

Thank you so much for the reply. This is happening so fast. Mammogram the middle of June, tumor biopsy -5.8 cm invasive lobular carcinoma. Lymph node biopasy (cancer). CT scan and bone scan last week (pretty clear, just watch). And now surgeon and oncologist want chemo, masectomy, then radiation.
Mine is not triple negative but is in lymph nodes. Your treatment sounds like the plan for me. I am so happy to hear your treatment is successful.
Did you get reconstruction at the time of masectomy? That worries me too since reconstruction is started before radiation.
Again thank you.

You have reassured me!
I am researching quickly because they want to start chemo in about two weeks.
Everyone in this loop, thank you so much. I don't feel quite alone although I have great support. I couldn't find anyone with ILC.
Thank you!!