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mch (Marycarol) avatar

Life Expectancy with cavitary MAC

MAC & Bronchiectasis | Last Active: Aug 4 7:25pm | Replies (68)
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Profile picture for tconz @tconz

2 years on Voriconazole is a long time. NJH told me I could only be on it for 6 months and I was so glad when that 6 months was up. It affected my skin, hair loss and eventually started getting Squamous cell skin cancer in multiple places. I read that long duration on Voriconazole could have these effects. You are one of the lucky ones to tolerate it for that long.

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Rick | @rstel7272 | Jul 30 4:04pm

I had another bronchoscopy last month, culture detected Pseudomonas. Started new antibiotics, and I got referred to an ID next Monday. I have no idea if the Bronc detected aspergillus or not, not much info from the pulmonologist. SSD started pestering my pulmonologist office. Pretty frustrating but I am feeling better again. I did a few months of half vfend dose and side effects were greatly reduced. ~Rick

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