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DiscussionMy lessons learned about idopathic non-diabetic peripheral neuropathy
Neuropathy | Last Active: Aug 3 9:35am | Replies (38)Comment receiving replies
Replies to "John - thank you for tempering my comments. I'll be quiet now. Going thru a bad..."
I agree with @julbpat, a "bad patch" is something we all can relate to and we can help each other get through the day. It helps when we can discuss the shortcomings of medical care and help other members navigate difficult medical conditions like neuropathy. I didn't mean to temper your comments but just wanted to offer some hope for a lot of us that have felt the same thing on our journey. I guess my own excitement for the Patient Revolution organization got the best of me. It offers me some hope for future generations of patients but a part me wants it in my own personal healthcare right now.
A “bad patch” is exactly what this forum is for! Keep talking - believe me, this group is listening and nodding.
I just politely fired my neurologist after 2 1/2 years. I am a nurse, and even though he was fresh out of residency and I was one of his first patients, I thought “I’ll give this a chance”. His lack of curiosity about strange symptoms and worsening neurological symptoms allowed me to be grossly over medicated for 18 months. That’s a long story, but UAB figured out what was happening. They have agreed to be my primary neurologist, even though it’s 2 hours away. Thank goodness for patient portals and telemedicine.
When working as a nurse, I was kind, concerned, reassuring - I broke my own rule by staying with a doctor who didn’t meet my personal standards, mainly out of convenience. Plus I was too sick from the over medication to make changes.
So yes, follow your instincts, because harm can be done. Your points have validity.