← Return to Recently diagnosed with a NET in my middle lobe of my right lung.

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Since you have 5 lung NETs, read up on DIPNECH which is something some of us with multiple nodules also have. It can be a precursor to NETs. It’s very rare but they also think it’s underdiagnosed since most doctors have never heard of it. You may not have that since you don’t have respiratory symptoms and most of us have had a longstanding cough and/or shortness of breath and even mucus issues. Octreotide really helps symptoms if you ever have any.

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Replies to "Since you have 5 lung NETs, read up on DIPNECH which is something some of us..."

I had no idea that DIPNECH did not have any somatostatin receptors. Thanks for sharing.