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Profile picture for Lori, Volunteer Mentor @loribmt

Happy to see you went ahead with the CAR-T procedure. Now that’s all in the rear view mirror as you’re moving forward!
It’s ok that you don’t seem to be as excited as everyone else. We all process experiences differently! What is important, is that you had a complete positive metabolic response and doing well. Thank you for the update! Hopefully in time you’ll stop listening for the ‘shoe’. ☺️

You mentioned being fatigued yet. That’s all part of recovery for a while. From what other members have stated, it can several months to regain stamina. How are all your blood numbers looking?

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Replies to "Happy to see you went ahead with the CAR-T procedure. Now that’s all in the rear..."

Yes, actually the last labs looked good, my WBC and lymphocites were still low but the neutrophils are good. I know they also said they will fluctuate as well.

Interesting to hear shop516 state that they are waiting for the other shoe to drop. I have had the same feeling. Went through CAR-T in June at Univ. of Kansas Med. and cancer is in total remission. That being said, i know it can come back, and it is sometimes a challenge not to get stuck in that thought. I am really trying to just take one day at a time and celebrate that i am alive.