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CAR-T Cell Therapy: Introduce yourself and connect with others
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 4 days ago | Replies (329)Comment receiving replies
Hi Lori.
Thanks for checking in. I actually had my CAR T in April.
had some bumps and nort so good days along the way, but all and all doing pretty well, mostly fatigued.
Had a complete metabolic response, I just seemed to not be as excited as everyone else, always waiting for the other shoe to drop..... but Im getting on with life. hope you are well.
Replies to "Hi Lori. Thanks for checking in. I actually had my CAR T in April. had some..."
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Happy to see you went ahead with the CAR-T procedure. Now that’s all in the rear view mirror as you’re moving forward!
It’s ok that you don’t seem to be as excited as everyone else. We all process experiences differently! What is important, is that you had a complete positive metabolic response and doing well. Thank you for the update! Hopefully in time you’ll stop listening for the ‘shoe’. ☺️
You mentioned being fatigued yet. That’s all part of recovery for a while. From what other members have stated, it can several months to regain stamina. How are all your blood numbers looking?