@llthomson and @moloney1231 As I understand it, they don't yet have a lot of data for lobular. My diagnosis was the same as yours. I do wish the docs had sat down to explain all the options, including the side effects of being on an estrogen blocker. That point is thrown out when you're feeling relieved because it's only a lumpectomy. A good friend (who had ductal) and I discuss this. These meds have systemic effects. Joints are aching that never ached before. There is not enough eye drops in the world to make my eyes moist. I would have liked a flow chart with possibilities.

When I was having my stereotactic biopsy, I got talking with the nurse. Her mother had lobular but died of something else. The nurse (probably in her 40s) had lobular and had a double mastectomy. gulp. I am in my late 70s and wonder if the doctors felt comfortable not being more aggressive because it's likely that I might not be alive in ten years (My health was excellent before this) Now more than one expert is saying that Mammoprint and Oncotype (sp?) may not apply for lobular. I'm grateful for this loop that allows us to share our experiences.