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Diagnosed (spindle cell sarcomatoid uterine cancer) and need support

Gynecologic Cancers | Last Active: Jul 29 1:10pm | Replies (5)
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Thank you for your comment. I really have not looked at anything but very credible sources like Cleveland Clinic, Mayo, ACOG, etc.

At this point I am enjoying my last week of freedom and good health. I have been cleaning, making time for friends and family, kayaking, hiking, and cooking. I am preparing myself for a long 6-8 weeks (I am not a candidate for laproscopic surgery) of recovery by buying necessities like a hysterectomy pillow, downloading lots of music to my playlist and books to my kindle. I have a supply of maxi pads and comfortable clothes. Other than some severe cramping and eating a lot for me I feel like my normal self.

I WILL BEAT THIS! Cancer sucks!

Beth

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Replies to "Thank you for your comment. I really have not looked at anything but very credible sources..."
Helen, Volunteer Mentor | @naturegirl5 | Jul 29 12:04pm

@beth365 Beth, What a terrific week you've got going for yourself. Getting those necessities taken care of like grocery shopping and cooking ahead of time, downloading music and books, getting those comfortable clothes all sound so very productive. I did the same before my hysterectomy not knowing ahead of time how I would feel after and how much energy I would have.

Hiking and kayaking? You are a very outdoor and active person. At some point after you are healed you will doing those activities again. With an abdominal hysterectomy your recovery time will be longer however you will be well prepared.

I'm glad to know that you are reading credible (valid and reliable) sources.

Do you have someone to go to the hospital with you and at home to help you out when you get back home?

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bettydee | @bettydee | Jul 29 1:10pm

I can’t comment on your specific cancer, but I will say 2 things -
1 - as previously stated, all statistics are old history.
2 - I had a complete, radial hysterectomy with EVERYTHING removed and cut vertically about 14” from above my belly button to ALL THE WAY DOWN.
I did not need any narcotics for pain, I was driving in 2 weeks. All in all, recovery was much easier than expected. I, too prepared for the many weeks of recovery, but it surprisingly went much better than expected. I live alone and managed fine on my own.
Hoping this gives you some encouragement.

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