← Return to Can anyone share their experience with Mandible reconstruction?

Discussion
Comment receiving replies
Profile picture for dar206 @dar206

Thank you so much for phrasing everything as honestly as you did. I'm just starting out with the possibility of radiation. I have a non-aggressive cancer in my salivary gland. I had surgery and was then asked to speak with the radiation oncologist. I knew nothing going into this. The rad. oncologist pretty much told me nothing and I walked out of there knowing that they would make me a "special cap" and that I should see the dentist. Radiation would be the usual 5days/6 wks. I was told nothing more and asked to notify him of my decision. When I emailed back and said that I thought I needed to wait until I felt stronger from my surgery, I was then given the SOP you mentioned. No, it needs to start in eight weeks etc. Then when I saw the nurse in the ENT's office, she asked me who I had to help me. Help for what? She said I may need someone to drive me for the treatments. I'm 74 y/o, worked hard raising my family and never had help. So every day since that day, I have researched radiation and salivary gland cancer online. This forum has been very helpful. I never knew about any of the possible side effects, nor how long they can possibly last. I might be reading too much into everything, but I really feel people should be educated about what's possible. I wish you the best of luck.

Jump to this post


Replies to "Thank you so much for phrasing everything as honestly as you did. I'm just starting out..."

I’m 71 years old and you should question everything, which of course pisses them off but you have every right to know “all” information that drs. have as well as every right to question everything they are trying to put into your body, but most importantly you have an exorbitant right to not only know everything but the right to participate in the treatment plan so you can research it yourself!! Be well & careful- I know that as long as I’m alive you may contact me anytime night or day. Sincerely, Robert

I recommend using Chat GPT. You can put a picture of your results or type them in, along with your age and health. It puts everything into plain English so you can understand better. I went to my first oncology appt today and my dr was shocked at how much I knew.