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Anyone dealing with ANCA GPA Vasculitis?

Autoimmune Diseases | Last Active: Sep 28 8:53pm | Replies (24)

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Thank you. I will take all the blessings I can get. In spite of being sick for a very long time, up until October I was working full time as a Physician Assistant in a very busy urgent care and doing pre-anesthesia testing at the local hospital. In October I got C-diff colitis secondary to antibiotics being prescribed for chronic recurrent UTI. It all went down hill from there. I ended up with a ruptured bowel, that was not healing properly due to recent high dose prednisone. It was followed by 6 abdominal surgeries in a 12 day period. I spent many weeks in ICU total time in the acute care hospital was 2 months then I went to an acute care long term rehab for two months. At the end of December I was so weak I was not able to walk, I was receiving IV nutrition because I could barely eat. I finally was discharged the end of Feb. I went home with walker, wheelchair, and 18 hours a day of IV nutrition. Fast forward to today. I went to the YMCA this morning and worked out in the pool for one hour. I still have not returned to work and was denied disability. I am fighting that, just playing the waiting game now.
My hearing is such that I am receiving hearing aids on Wednesday. But I feel so blessed to be walking and talking on this earth right now.

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Replies to "Thank you. I will take all the blessings I can get. In spite of being sick..."

Goodness! I am down to very low prednisone daily now (2.5mg) after large doses for several months. The Tavneos has helped me move off the prednisone by keeping my B cells "in line". Earlier before diagnosis, but after illness (April 2024), I was diagnosed with 2 bleeding gastric ulcers and diverticulosis - had NEVER had problems before and this was before prednisone treatment. Kept telling medical team that this all was part of a big picture. (And it was.) But it sounds you are fortunate to be alive and LOOK AT YOU - out exercising. Goooo! It really is hard to understand how some people get on disability so easily while others are denied time and again! Hope that will be sorted out as it certainly sounds like you deserve it. Keep up the healing!!!