Yes, we MUST advocate for ourselves. I honestly believe the only reason I got the right diagnosis after 9 months was because the nephrologist pulled in for consult had researched ANCA at Duke. He had biopsy of my kidney sent to Arkansas for confirmation. The mistake I made is only having solumedrol drip 3 days with oral prednisone, and then choosing Rituxamab inside of Cytotoxan for my first infusion. All the docs except the nephrologist said that Rituxamab was the best treatment. Should have used Cytoxan as I had a major flare in less than a week and that's when most of the organ damage was done. Then had 3 more days solumedrol, Cytoxan infusion, 4 units blood, 7 plasma exchanges, and another Rituxamab infusion before coming home 2 weeks later. I hope we both improve with the right treatments. I am taking Tavneos (avacopan) 30mg 2x daily and lots of other things. Have had Rituxamab 2x since hospital release and am scheduled again in December. Thankful for an appt in Sept at Mayo, Jax. Looking to live the best quality life I can. God bless you.