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Recently diagnosed with a NET in my middle lobe of my right lung.
Neuroendocrine Tumors (NETs) | Last Active: Aug 1 5:40pm | Replies (19)Comment receiving replies
That is interesting, I'll keep it in mind. My CT showed a much clearer picture and caught 3 smaller (presumed to be NETs) in addition to the 2 larger ones the PET scans caught so I was told I'll be followed with CT as well.
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Since you have 5 lung NETs, read up on DIPNECH which is something some of us with multiple nodules also have. It can be a precursor to NETs. It’s very rare but they also think it’s underdiagnosed since most doctors have never heard of it. You may not have that since you don’t have respiratory symptoms and most of us have had a longstanding cough and/or shortness of breath and even mucus issues. Octreotide really helps symptoms if you ever have any.