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Mesenteric Panniculitis and Sclerosing Mesenteritis: Let's connect
I thought I would start a discussion for patients with Mesenteric Panniculitis. From what I know, this auto-immune disorder has three stages to it, each with differing names (Mesenteric Panniculitis, Schlerosing Mesenteritis, Retractile Mesenteritis). Typically, this appears to be in older individuals with some other under-lying problem (Lymphoma, tumor, diverticulitis).
I have an atypical presentation because I do not have an underlying cause. The doctors seem to be hoping for Lymphoma to appear so they can treat it and have the auto-immune go away. I am interested in hearing from others with this. I had this diagnosed in 2011, so I am interested in hearing more about what this is like to live with. I want to hear from others who also have an atypical presentation. Did is come back? Also interested in hearing from those with Lymphoma. How was the treatment? Did it address the auto-immune?
Pretty much, I am interested in hearing from anyone who has had this, so i can better understand it, and not feel so alone with this!!
Bill
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I was diagnosed with mesenteric panniculitis in June of this year 2025. I also have fatty liver disease, I don’t have diabetes which I find it strange usually it comes with this disease. I wonder if liver disease connects with this mesenteric panniculitis in anyway. My doctor prescribed me some Corticosteroids to help with the symptoms however I just got a resent CT scan with contrast and it revealed it’s gotten worse. I’m waiting on my doctors recommendation on what to do next.
I am 39 years old. Normally fatty liver doesn’t come this early in life. I’ve had trouble eating dairy and other foods the past ten years so I basically avoided dairy but now it’s not helping. Now with this Mesenteric panniculitis I am definitely having a hard time finding a solution on how to get my body back to normal.