Hi @mk1124 - nice to meet you. I was diagnosed with MEN1 six years ago and have had multiple surgeries, scans, etc. I think the most important thing you can do is to educate yourself on the condition and then find a healthcare org that can support a multidisciplinary approach to managing it. I found this site to be helpful when I first started this journey - https://amendusa.org/patients/information/men-1/. Just know you are not alone and we are here to help if you have any questions.
- Matt