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Giant Cell Arteritis Diagnosis
Polymyalgia Rheumatica (PMR) | Last Active: Aug 3 6:19pm | Replies (98)Comment receiving replies
Hello! What you woke up to that morning is exactly what happened to me this past April, only it was in just one eye. You described it perfectly!! Was that in both eyes for you? And what is your vision like now? I hope your vision is back to normal. I was immediately put on steroid infusions every 24 hours for 4 days and have been on prednisone ever since. I also do Actemra infusions every 4 weeks. My vision in that eye has gotten better, but there are still grey blotchy areas. And yes, my prednisone tapering has definitely caused fatigue. Thank you for everything you wrote! And I am so thankful for this group as well!
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Yes mine was in my right eye only. My vision in that eye is still blotchy and grey areas. That has not improved. Guess this is my new norm now. I am so thankful it was not worse. My Neuro Ophthalmologist did not want to put me on Actemra. No clue why. I went last week for my visit and she has me on 1 mg 3 times a day for 1 week, then 2 mg/day for 1 week, then down to 1 for 1 week. Then one every other day. I fell about a month ago and have been having terrible arm and shoulder pain. They checked it out and can not find anything wrong with it. Now the other arm is also hurting and I do believe it is pain from prednisone withdrawals. Good luck and God Bless you with this diagnosis. Thanks also for responding.