Update on my husband's glioblastoma. Since he no longer wants any treatment and is getting more symptoms (difficulty in finding words, confusion, forgetfulness and fatigue), we have opted to talk to Hope West, our local hospice provider. After an interview with a hospice nurse we were very impressed and he was very receptive to the care he will get to improve his quality of life. While my husband is still able to function on his own we will have a nurse check in with us once every two weeks. Once he starts to have difficulty walking, bathing, etc., they will come whenever necessary. They said that he can stay in our home and they will come to us. They also provide 24/7 help and when you call for that help a real nurse will answer. They will not treat the glioblastoma but will make every effort to ease his symptoms so that he can have a better quality of life. They will be monitoring his medications and bring them to us so we don't have to go through the doctors and pharmacy any more. He is now officially on Hospice. That doesn't necessarily mean the end is near but it does give us hope that his quality of life will improve. As a caregiver, I feel relief, knowing he will feel less fatigued and can still function and enjoy time with friends. My relief also is that I will be educated in the ways I can help him and can also get some "me" time to regroup. I highly recommend to anyone struggling with this horrible cancer that they consider getting Hospice or at least Palliative Care. It is covered 100% by Medicare. And remember, as a caregiver you must take care of yourself. That is as important as it is taking care of your loved one.