Hello,
I am Dee and I am new to this group. I am 59 years old and I have pituitary tumors. In 2016, I had a pituitary tumor removed. In four years more came back. It has been a struggle since. I am 5'2 and went from 120 lbs. to 209 lbs. I have had lab test and my test do not denote Cushing's, the doctors say, but I have all the symptoms. Its very hard to find a good doctor that understands. By abdomen is extended like I am 8 months pregnant. Its quite embarrassing. My cholesterol is very high. I stay exhausted. I have head discomfort on my right side. The endocrinologist I had seem to not care and lacks interest. Finding a neuroendocrinology doctor seems impossible. Medical doctors are at a loss. The only option seems like surgery. I do not want to keep getting repeated surgeries. The last time I had surgery I lost my sense of smell. The surgeon never warned me this could happen. Does this mean the next surgery, I could loose my smell all together? I urinate a lot enabling me to enjoy life. I am at a loss and don't know what to do. I have an appointment at the Cleveland Clinic this fall so hopefully I may get some answers. I don't live near the Mayo Clinic or I would have made an appointment at Mayo. Advise or direction will be appreciated.