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Initial imaging and tests; what to expect after initial NETs diagnosis
Neuroendocrine Tumors (NETs) | Last Active: Jul 27 6:12pm | Replies (13)Comment receiving replies
Oh nice! I didn't realize there were individual groups, that's super helpful. Thank you!
No, I wasn't having breathing issues at all. I'd have never known without the CT for kidney stones. My lung function tests are all (still) at 100. But, I have pain that comes and goes. Some is dull, some is sharp. I am currently having a squeezing sensation on the outer left side and a dull ache in the upper left side as well. None of it is terrible pain, it's just annoying and it worries me that either things are spreading or maybe the tumor is just sitting on a nerve.
Replies to "Oh nice! I didn't realize there were individual groups, that's super helpful. Thank you! No, I..."
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In life there are both clubs we seek to join and clubs that seek to join us. Welcome to the lung NETs club. We’re all here for you. Great that you don’t have any respiratory symptoms. Best of luck with your upcoming procedures. If you’re being told slow growing then you likely have typical carcinoids which is good. A lot of us have had slow growing lung NETs for a long, long, long time and we are still enjoying life. After you read through all the existing lung NETs threads with stories, please feel free to ask any additional questions you may have. 😊