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My lessons learned about idopathic non-diabetic peripheral neuropathy
Neuropathy | Last Active: Aug 3 9:35am | Replies (38)Comment receiving replies
Snagydude,
Thank you for your well-organized thoughts and suggestions. You are certainly right about the medical establishment and Big Pharma. I recently learned that I had celiac disease--an autoimmune condition which may account for my PN. I eliminated all gluten products from my diet as my neurologist, who ordered the blood test, never bothered to discuss the test results or give me further guidance. At the visit, he did tell me that my muscle wasting was due to my "disease." So I tried to build up muscle at physical therapy--where I was given leg lifts with ankle weights. I am now suffering with back pain. I am usually upbeat but this pain has me feeling down.
Replies to "Snagydude, Thank you for your well-organized thoughts and suggestions. You are certainly right about the medical..."
It’s so hard to explain to people why I can’t do normal self improvement activities that involve repetitive movement. My muscles will tighten up in response to pain or the muscle irritation that is necessary for tightening, toning and building muscle. Then I will have knots and trigger points that cause so much pain. Pain leads to terrible fatigue ( in my case) which then leads to depression, as I stay inside and take naps during the day, trying not to further aggravate my sore body.
I’m not talking about running a marathon, or playing pickleball ( agh! The thought of it!). I’m talking about pushing my lightweight mower (arms), walking too much in a large building like stores or church (legs, hips, back, knees, ankles), swimming laps (arms, ankles) … etc. I would love nothing more than to head out my front door and go for a brisk walk. Oh the pain, and resulting misery.
Dry needling is my new temporary relief. But I pay the therapy business $85 per session, and that only serves one area of my body. I have to choose. Last week I chose the backs of my upper arms, and shoulders, because I was having trouble even shampooing my hair. The PT said my biceps were completely tight, not just the usual knots. Relief, but of course the pain and tightness will return.
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Sorry to hear of you circumstances. I don't normally respond to messages but you resonate with me. Please check with the regular weight lifts that are recommended. You are no longer "regular" and need to recalabreight your weights. Please continue your use of weights. Only you can determine what is apropriate. Steve