Connect
← Return to Cannot Regulate Body Temperature
Discussion
Cannot Regulate Body Temperature
Autoimmune Diseases | Last Active: Jul 28 11:42pm | Replies (64)Comment receiving replies
I’m taking Plaquenil and doctor is working through the list of drugs I must try before infusions. Currently on Cellcept. I also take other drugs for Sjogren’s symptoms, dry eye, GERD, etc. It’s crazy. 🤑
Tell me more about the small fiber biopsy. Does it hurt? Is there a big incision? Where? How long is the procedure? I will need wound care, slow healer. Ugh.
Also, is IVIG a capsule? What drugs do you take for Sjogren’s?
Talked with my internist this this morning. He’ll work with my Rheumatologist after my appointment on Wednesday. Although I trust both doctors, knowledge helps me ask the important questions. Thank you for your response.
Replies to "I’m taking Plaquenil and doctor is working through the list of drugs I must try before..."
I looked up Cellcept (because I hadn't heard of it). Do you have a transplant of some sort? It is probably why you don't heal easily.
Connect
The small fiber byopsy is very minimal with 3 punches at the ankle, knee and shoulder blade that each require a band-aide. Right or left is up to you. I had my neurologist (who did my EMG) do mine and even 'though I had no sensory symptoms I had a very positive SFB. The SF is part of the autonomic nervous system. I was on Plaquinel until IvIg which is an infusion you take every 3 weeks probably for the rest of my life. Or until they come up with a drug for us which they are working on. Look for articles and newsletters about Sjogren's. They are a good source of info.