I experienced a severe autoimmune reaction to Reclast. My osteoporosis primarily is in my hips, and my endocrinologist prescribed 12 months of Evenity injections, which I tolerated without any issues. After completing the 12 months, I had another bone density test, which showed significant improvement. My endocrinologist was very pleased with the results and recommended that I receive two Reclast IV infusions, spaced 12 months apart.

I had my first infusion 7 weeks ago, and within 48 hours, I became completely stiff and immobile from my skull down to my feet, with intense pain. My doctor explained that the Reclast had attacked my musculoskeletal system, something she described as “unprecedented.” I was prescribed a 5-day course of Prednisone, but once I finished it, I relapsed completely. Another 5-day course was given, but she then advised me to “tough it out” with Diclofenac since Prednisone is counterproductive for bone health.

The Diclofenac did not help and caused severe stomach issues, so she switched me to Celebrex. By the fourth week, I was 100% back to normal from my shoulders to my feet, but the stiffness and pain in my neck and the back of my head (skull) remain relentless. Every attempt to taper off Celebrex results in such severe stiffness that I’m unable to function. In the past week (6th week) I've developed Vertigo.

Weighing only 100 pounds, I’m worried I might have been given the wrong dosage. I’m physically and emotionally exhausted from the unrelenting stiffness and pain. I’ve decided to consult a Neurologist specializing in neuromuscular disorders, as I’m convinced Reclast has caused lasting damage to my cervical spine. This has been an absolute nightmare, and I see no end in sight. I plan to report my case to the FDA.