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Anyone dealing with ANCA GPA Vasculitis?
Autoimmune Diseases | Last Active: Sep 28 8:53pm | Replies (24)Comment receiving replies
I have ANCA negative vasculitis Cogans syndrome. I was diagnosed about 18 years ago have been on many different treatments. I will go in remission then tend to creat antibodies to the meds. Just recently was diagnosed with Autoimmune Hepatitis and Primary Biliary Cholangitis. They. Currently have me on Ursodiorl high dose methylprednisolone and was started on azathioprine. They will try and increase the azathioprine next month and hopefully can decrease the steroids.
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So sorry you have been sick for so long. So, you are ANCA negative and I am ANCA positive. Mine has attacked the vessels in my ears, sinuses, eyes, lungs, and kidneys. I am taking Tavneos (avacopan) 2x daily and my numbers are looking better, but I have read that you must consider symptoms also when deciding if the disease has gone into remission. I am praying for no major flare again. Not sure my body could tolerate it. But in that light, I am trying to live the best life I can. Blessings to you.