← Return to Anyone Referred To National Jewish Health Due To Intolerance To Meds?

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Good Morning Linda 1334. There seems to be a general misunderstanding about NJH based on statements made by people who havent been treated there so I am hoping to clear up a few things that might assist you with your decision about being treated at NJH. There is the clinic and there is also National Jewish Hospital which is down the street. The clinic of course handles the lung issues (also cancer, RA and others) and all of the testing, visits with the specialists etc are done there. There may be a procedure that would have to be done at the hospital but most everything is handled at the clinic. I was diagnosed with MAC and bronchiectasis in 2019. The MAC is gone, 2 treatments of 18 months each needed to get the job done, and I go in annually to the pulminologist now. NJH is the best there is. I used to live in Colorado but now I am in South Dakota and drive down for my annual. Everybody has to make their own decisions about who treats them but I would not base my decision not to be treated at a world class facility based on one persons negative response. My treatment there has been outstanding, thanks Dr. Daley and Dr. Goldstein, and I feel fortunate to have been treated at a gold standard facility. I do wish you the best.

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Replies to "Good Morning Linda 1334. There seems to be a general misunderstanding about NJH based on statements..."

@greeneyes8, thank you for your reply. May I ask what drugs were used to treat your MAC? My issue is that the azithromycin caused hearing loss and the ethambutol and rifampin caused neuropathy. Both issues have not improved. When the MAC came back, I was put on azithromycin again, rifabutin and Arikayce. I couldn't tolerate the azithromycin and rifabutin every day (I was on 3 days a week the first time) because they caused severe gastro problems. My new ID doctor took me off the drugs completely because I have very few symptoms, however, my pulmonologist suggested that maybe NJH would have a different treatment protocol they could offer me. I was wondering if anyone else had gone there who could not tolerate the big 3 and what may have been prescribed for them.