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DiscussionAnyone Referred To National Jewish Health Due To Intolerance To Meds?
MAC & Bronchiectasis | Last Active: Jul 29, 2025 | Replies (29)Comment receiving replies
Replies to "Good Morning Linda 1334. There seems to be a general misunderstanding about NJH based on statements..."
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@greeneyes8, thank you for your reply. May I ask what drugs were used to treat your MAC? My issue is that the azithromycin caused hearing loss and the ethambutol and rifampin caused neuropathy. Both issues have not improved. When the MAC came back, I was put on azithromycin again, rifabutin and Arikayce. I couldn't tolerate the azithromycin and rifabutin every day (I was on 3 days a week the first time) because they caused severe gastro problems. My new ID doctor took me off the drugs completely because I have very few symptoms, however, my pulmonologist suggested that maybe NJH would have a different treatment protocol they could offer me. I was wondering if anyone else had gone there who could not tolerate the big 3 and what may have been prescribed for them.